As a toddler, William Butchart loved lining up constructing blocks neatly by coloration – what he now sees because the “stereotype” of autism.
The issues concerning the scenario that they discovered difficult and sometimes upsetting had been very completely different.
William felt unable to observe social “norms” – he struggled to kind friendships or perceive “jokes”.
He additionally skilled a number of sensory points. Some textures and meals had been insufferable and sudden, loud noises might overwhelm him with concern.
But as he grew up, William says he realized to “blend into the background”, successfully hiding his autistic behaviour.
That was till each of their kids had been identified with the situation.
William's son, who can not communicate, was two years outdated when he was identified and his daughter was solely recognized as autistic after having a psychological well being disaster on the age of 13.
After studying extra about his kids's situations, church minister William realizes that all of them have noise issues and that their diets are very restricted. She and her son solely eat “beige” meals.
This realization led him to query the struggles he had been battling for many years.
He mentioned, “I couldn't just leave it at how I felt – I needed someone to really assess it.”
“Once I started learning what autism really was, it started to impact me more.”
Autism is a lifelong developmental situation that impacts the way in which individuals talk and work together with the world.
Some individuals discover it obscure how others suppose or really feel, whereas others expertise sensory issues – which means that shiny lights or loud noises may be overwhelming, tense or uncomfortable.
There are a minimum of 56,000 autistic individuals in Scotland, together with each kids and adults, in addition to an estimated 225,000 members of the family and carers.
According to the Scottish Government, there was a “significant increase in referrals” – placing stress on an already strained NHS.
Autism 'stereotypes'
Last September, William obtained his analysis via a personal clinic.
The 41-year-old, from Ellon, Aberdeenshire, initially checked via the NHS however discovered the method tough and knew the wait could be lengthy.
“You have to fight with your GP,” he mentioned. “Before you can come on this path you have to prove that you can be autistic.
“I know people who have gone to their GP and been told you have social anxiety disorder, but what causes social anxiety disorder?
“I decided, finally, I had the opportunity to go private so I did.”
Williams mentioned his analysis got here with a way of aid.
It answered a variety of questions and helped him acknowledge that exterior elements, not individuals, had been typically the supply of his frustration.
But deciding what to do with the data was one other hurdle. “You have to figure it out for yourself,” he mentioned.
It took two weeks for William to have the ability to inform individuals outdoors his household about his situation.
He was particularly anxious about telling coworkers at his church — however he discovered that individuals had been very constructive, and in some circumstances, not shocked.
William then attended a six-week help group referred to as Embrace Autism – which is funded by the Scottish Government and run by the suppose tank Autistic Knowledge Development.
Here, he was capable of mirror on how all of his life experiences – together with probably the most tough – have formed him right into a extra caring particular person.
“There's a wide range of people who are autistic, from people in the professions to people who are finding it all a real challenge,” he mentioned.
“There is a stereotype that autistic people don't feel empathy – that's a lot of nonsense. Some maybe not – others have the opposite problem, a lot.”
“I learned how to read people, I learned how to manage my presentation.
“But I also learned that I don't want to make people feel how I was made to feel.”
In Scotland, more adults are seeking an autism diagnosis later in life due to better awareness of neurodiversity, according to the National Autistic Society Scotland.
The charity said people often feel “broken” before diagnosis, and it is important for autistic people to understand both their challenges and strengths.
But it says some people wait years to be seen by the NHS – and in some parts of Scotland, people may not get a diagnosis at all.
It wants the Scottish Government to provide more funding for adult autism diagnosis.
But the waiting list in Scotland is not publicly available so it is not yet possible to understand the scale of the problem.
In England, where the figures have been published, the number of adults waiting for treatment rose from 9,705 in 2019 to 78,638 last year.
Dr Chris Williams, vice-president of the Royal College of General Practitioners (RCGP) Scotland, said GPs were reluctant to refer patients who would benefit from support – but the criteria for referral were too strict.
He said it would be helpful if the public were better informed about the criteria – and how autism, which is not a disease, has no treatment or 'cure'.
He says because of the long wait times, more people are seeking diagnosis in the private sector.
The Scottish Government has said people are waiting too long for a diagnosis through the NHS but it is working to improve access.
Mental Wellbeing Minister Mary Todd told BBC Scotland News: “A combination of factors, including a significant increase in referrals, means some people are waiting longer than expected for a diagnosis.
“We invest £1 million a year to provide community and support to autistic adults, including the Embrace Autism programme.
“A formal diagnosis is not required to access the support provided and we know that 78% of autistic adults who received support reported better health as a result.”
With inputs from BBC